WATCH: "We Want Our Country Back"

Read more

Charter to recognise rights of people living with Motor Neurone Disease

A five-point charter aimed at raising awareness of motor neurone disease (MND) can improve life for sufferers, Catherine Bearder MEP has said.

key_catherineconstituency.pngMND kills five people a day in the UK, with half of people dying within 14 months of diagnosis. This terminal disease can affect any adult at any age and there is no known cure.

The condition is still little understood and this contributes to many people with MND not receiving the care and support they need.

However, the MND Charter has been launched with the aim to change this.

The charter sets out what good care looks like for people with MND and their carers and is designed to raise awareness and understanding of the disease.

Catherine said: "I am delighted to sign up to the MND Charter. I believe everyone with this devastating disease should be supported to maximise their quality of life and die with dignity."

Liam Dwyer, a person living with MND and fronting this year's MND awareness campaign, said:"Many people with MND die without having the right care, not having a suitable wheelchair, not having the support to communicate.

"When living with MND, one month waiting for an assessment or a piece of equipment is like a year in most people's lives, especially as half of the people with MND die within 14 months of diagnosis."

The MND Charter has already received endorsements from the Royal College of General Practitioners (RCGPs).

It aims to ensure people with MND get to information, care and services which allow them to maximise their quality of life and ensure they are treated with dignity.

Farah Nazeer, director of external affairs, said: "What matters most is that people with MND and their carers can access the right care, in the right place and at the right time.

"We need to ensure that the needs of people with MND and the priorities for good care as set out in our charter are recognised and respected.

"We urge everyone to sign the charter to show their support."

You can find out more about the charter by logging on at

Share this post on social media:

Sign in with Facebook, Twitter or Email.